‘Lenny’ (my COPD/Asthma) & Me 4 Today – – Routine & Schedules

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Pics--TimeAndClocks Most know by now that I am battling daily with my sidekick ‘Lenny’ (the name I have given my COPD/Asthma) and part of my therapy is to put into words how my week or day is going and then sharing it openly as part of what I call my responsibility.

Responsibility for me is to share my travels with others with the hopes that maybe, just maybe I will reach even one person who could read what I write and realize they are not alone.  Using social media I will continue to reach out to others with information, ideas and my own story hoping it may supply someone, somewhere a little insight, a little knowledge and maybe a few questions.

While my buddy ‘Lenny’ (my COPD/Asthma) may not be anywhere near as severe as many, it is bad enough that even though I am not on oxygen 24/7 yet I do find it very, very difficult to work or do anything much physical for more than about 15 minutes without having to stop and let my lungs catch up.

Today I once again share where I am at and maybe how I may or may not be dealing with it.

Many days my biggest battle is not so much with ‘Lenny’ as it is with myself as one of my personality weaknesses is keeping in a routine or on a schedule, which is why I always seemed to do better in jobs where I had a set schedule with things to do and/or places to be or go.

Not having the ability to work a regular job I begin each day with big expectations and ideas for my writing and photography only to get to the end of the day and find myself asking ‘where the heck did the day go’.

Now I have had plenty of stretches where things seemed to mesh together and I seemed to get plenty of writing done and photographs taken, then I will slip up one day, then another, then another and before I know it another week has zipped by and all I have to show for it is daily lists of items not checked off, ideas not started and expectations not met.

I try so hard to set myself up on a schedule, a routine and yet without that regular schedule with a clock in and clock out I seem to flounder around at times like a poor goldfish that jumped out of my grandson’s fish bowl, and I flounder, flounder, flounder until I like give up and go take a nap.

What I do notice is the stress I put on myself sometimes of wanting to get things done and then not getting them done will give ‘Lenny’ an opportunity to use the stress step of those trigger steps to kick in my COPD/Asthma enough to make me really tired and exhausted.

So as much as I know I work best when I have a routine or schedule laid out, it seems without an actual out-right, old-fashioned clock in, clock out job I flounder as being my own boss at times.

The question that is up to me is to fight back and work harder at acting like my writing and my photography is a real job with a real schedule while watching for ‘Lenny’ and his triggers to make sure they don’t fire away at my breathing and energy levels.

Oh and my idea of doing Tai Chi that I shared with you all last week – well that storyline is waiting for next time.

And that my friends is where ‘Lenny’ (my COPD/Asthma) and me are at 4 today.

NOTE TO REMEMBER: Sometimes we share what may seem like medical information, but we are only giving descriptions and highlights of various aspects of having COPD and/or asthma and no way do we ever want our information to be considered medical treatment type of information, always consult your physician for more, clearer and more medical founded information.

As always – if you or anyone you know have any symptoms involving lung and breathing functionality, and they linger over and over while disrupting a lifestyle – then please ask questions and get it checked out.

Remember – a person without breathing is a person without life itself.

I bid to all – smiles, prayers, blessings and steady breathing – Mr. William.

(Copyright@2015, CrossDove Writer through wheezingaway.com)

(Image used cleared for use by yahoo.com and/or google.images.com)

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Reflections of COPD/Asthma – Dirty Looks & Misunderstandings

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Health--COPD--ThreeBranches For me battling COPD/Asthma also means a responsibility to take this battle seriously and that means to always look for ideas, research, diagnoses, game-plans and all that go with keeping the true seriousness of the battle at bay.

It also means being willing to be transparent about my travels with the diseases and to be willing (even on those days I don’t feel like it) to constantly share with whomever is willing to listen the ins and outs of both COPD and Asthma so that maybe, just maybe, someone else will find the needed hint of encouragement, knowledge and comfort needed for their own battles with either or both COPD and Asthma.

I take that responsibility seriously as it has importance, for attempting to help even just one person feel better or become more knowledgeable about these wonderfully not-so-friendly life companions we call COPD and/or Asthma.

Today’s ‘Reflections of COPD/Asthma’ is a look at those ‘dirty looks and misunderstandings’ that go along with having a health issue that is not visible.

Can’t tell you how many times I have parked in the handicapped spot, plopped my card on the review mirror and walked the shortest distance possible to the door, especially in the heat and humidity of summer – and as I progressed to the door there seems to always be someone who looks and relooks with that question in the eyes of ‘that guy is using the system he isn’t handicapped’.  I’ll bet everyone that is fighting their own battle with COPD/Asthma will have the same story, especially if you are not yet on oxygen at all times.

The sad part is when many of us get the same treatment from our own family members and/or friends.

Daily I find myself struggling to do much of anything that may need much physical work while fighting the frustrations that go with it – but most people don’t see that.

Daily I check my oxygen level (no I am not on oxygen yet, but know I will be someday soon), watch my diet and try to do things which will help loose that bit of extra weight I need to loose – but most people don’t see that.

Daily my wife asks me several times how I am doing, calls and checks on me while hoping that I remember to take my meds, get on my nebulizer and take puffs off the inhalers so I will breathe as close to normal as I will get – but most people don’t see that.

Most people only see me for those short spurts of time on my occasional trip to the store, church or maybe out for a visit – they only see me long enough to wonder why I look so normal, act so normal, maybe sound so normal but claim to be disabled and unable to work.

Do you find yourself explaining to others just what is wrong, sometimes more in depth than should be necessary and yet still get that look like, but you look fine.

Dirty looks and misunderstandings are one of the most frustrating things to deal with while battling COPD/Asthma, but as I get further along in my path I realize more and more that it is not me – but them – who have the real problem for not being willing to walk in my shoes even for a single day and begin to understand what I go through, what I battle each and every day.

My best response is to simply smile, nod and move on – although many times I just want to throw them a little kiss and wink just to irritate them more since maybe they don’t want to take the time to walk in others shoes.

Okay, before I start to ranting I will finish with this – YOU FIGHTING THE DISEASE ARE NOT THE PROBLEM – remember that.  Stay positive, think positive and know you are always doing your absolute best.

As with most postings from wheezingaway.com and CrossDove Writer, we like to throw out a question for our readers/followers to consider and maybe even add as some feedback, information or insights in the comments sections of wheezingaway.com – the question for this posting is: How do you in your battle with COPD/Asthma deal daily with those dirty looks and misunderstandings?

NOTE TO REMEMBER: We only give descriptions and highlights of various aspects of having COPD and/or asthma and no way do we ever want our information to be considered medical treatment type of information, always consult your physician for more, clearer and more medical founded information.

As always – if you or anyone you know have any symptoms involving lung and breathing functionality, and they linger over and over while disrupting a lifestyle – then please ask questions and get it checked out.

Remember that without breathing a person is without life itself.

With that I bid to all – smiles, prayers, blessings and steady breathing – Mr. William.

(Copyright@2015, CrossDove Writer)

(Information gathered from various news/health websites, COPD Foundation’s “Big Fat Reference Guide on Chronic Obstructive Pulmonary Disease” and the book “Live Your Life with COPD”)

(Images used cleared for use by yahoo.com and/or google.images.com)

‘Lenny’ (my COPD/Asthma) & Me 4 Today – – Changes

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Reflections--Reasoning--002 Being willing to share with others the path I am traveling while battling ‘Lenny’ (name I have given my COPD/Asthma) is almost like therapy for me while also giving me the responsibility of taking my battle seriously.

With the help of social media I know I can also reach out to others who are also fighting similar battles and hopefully at time supply a little insight, little knowledge and maybe stir up some questions.

Today I once again share where I am at and maybe how I may or may not be dealing with it.

I think that ‘changes’ can be a struggle for me to deal with at times and this week I seem to have just enough changes and possible changes to slightly upset my flow if I allow them too.

First the change from summer to fall starts with school restarting as it changes big time the schedule my wife follows and that schedule now will leave us with much less time together during that Monday-Friday time.  What it does mean is that we will have to make quality use of the time we do have.

Second is the neighborhood as the two empty lots on either side of our humble domain have been purchased and have already begun the work to build duplexes in both.  The person who purchased the lots and is developing them has a reputation which does not help keeping that feeling of ‘apprehension’ at bay, but I am working hard at keeping on best of terms with the person and situation has I have no control over it, especially since I found my lot lines at not exactly where I was told they were and we now only have about four feet off either end of our humble home – but they are required to be at least ten feet away so that will help, at least we have hope it will.  And thankfully the weather is just right that there is not a lot of dust and stuff flying around to give ‘Lenny’ a chance to throw a tantrum of any sort.

Third is my working with this weekly newspaper which is pushing me to get more writing done and while I am enjoying the opportunity beyond words, I still need to work more diligently at keeping on a schedule and being more organized – both of which I have been known for lacking much control of.

Fourth would be my attempt at learning Tai Chi.  After failing miserably with losing weight by going crazy on the stationary bike and attempts to push ‘Lenny’ with some extended walking I have chosen Tai Chi as something new to work at re-sculpturing my body shape and weight.  Surprisingly I have found it takes little Tai Chi to make my body ask me ‘what the heck am I doing’ – but I know it is a good stiffness and by being more diligent on my eating moderately, my weight is dripping down and my breathing is actually saying this might just work.

So today changes is what I am working on and as I diligently work on my routine I also know to keep close tabs on the mood and attitude of ‘Lenny’ (my COPD/Asthma).

And that my friends is where ‘Lenny’ (my COPD/Asthma) and me are at 4 today.

NOTE TO REMEMBER: Sometimes we share what may seem like medical information, but we are only giving descriptions and highlights of various aspects of having COPD and/or asthma and no way do we ever want our information to be considered medical treatment type of information, always consult your physician for more, clearer and more medical founded information.

As always – if you or anyone you know have any symptoms involving lung and breathing functionality, and they linger over and over while disrupting a lifestyle – then please ask questions and get it checked out.

Remember – a person without breathing is a person without life itself.

I bid to all – smiles, prayers, blessings and steady breathing – Mr. William.

(Copyright@2015, CrossDove Writer through wheezingaway.com)

(Image used cleared for use by yahoo.com and/or google.images.com)

‘Lenny’ (my COPD/Asthma) & Me 4 Today – – Knowing Limits

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Reflections--COPD Being willing to share with others the path I am traveling while battling ‘Lenny’ (name I have given my COPD/Asthma) is almost like therapy for me while also giving me the responsibility of taking my battle seriously.

With the help of social media I know I can also reach out to others who are also fighting similar battles and hopefully at time supply a little insight, little knowledge and maybe stir up some questions.

Today I once again share where I am at and maybe how I may or may not be dealing with it.

I think that ‘knowing limits’ is a struggle with anyone fighting a health issue and some of that comes from vanity because we just do not want to admit to the possible fact that we can not do some things we used to do.

There are many days where I know my wife may think I am being really grumpy or even down, but over time she is learning that instead of being grumpy or down maybe I am just really frustrated with discovering another moment of ‘finding a limit’ in something I was or wanted to do.

With my late ‘Stage III COPD’ I find so many things I want to do but am not able to that it gets very, very frustrating.  Things like mowing or some days just working in the yard, playing catch or throwing a Frisbee with a grandkid or maybe just taking a long walk – all things which I am very limited to now and all which I miss tremendously (yes even mowing).

‘Knowing limits’ for me even extends beyond my health issues as I have learned with my new camera.  While I love my camera dearly I am learning that because of its limited ability for super telescoping lenses that somethings I just can’t photograph the way I would like to – and that is very frustrating.  But even at my age I can learn and learning I am to concentrate on those areas my camera is workable and it is those areas for which I can now comfortably through my passion for a good, quality photograph.

‘Knowing limits’ in my eating habits has been truly a very difficult thing as I have never been a big vegetable eater beyond the basics and fruits, well don’t get my family started on my pickiness there.  But because of my health issues with COPD/Asthma and trying hard to decrease a slightly oversized figure I am learning to ‘know my limits’ on how much intake I have of many items I love like pasta, bread, dairy products and of course snack foods like cheese crackers and potato chips.  I have learned to become extremely close with the family of Mrs. Dash and can proudly say no salt has been in my cooking for nearly three years and yet all still tastes good and well-seasoned.

Yes ‘knowing my limits’ is never easy, but I continue on a daily basis in figuring out what they are, as most of ‘knowing my limits’ and how I handle them will almost always have a help or hindrance to my COPD/Asthma.

Do you struggle with ‘knowing your limits’?  Have you worked hard at remembering your limits so that they may or may not have a response on the level of your personal battle with COPD/Asthma for today?

And that my friends is where ‘Lenny’ (my COPD/Asthma) and me are at 4 today.

On a side note – my trip last week to Nebraska went very well, watch soon for a COPD/Asthma and Me response to all that went on.

*** I continue a request for all to hold Kaycie Chapman (from down New Zealand way) in your thoughts, prayers and blessings as she continues her courageous Facebook sharing of her continuing battle with late stages of emphysema/asthma/COPD – and she continues to do it with the level of faith and hope for which we all should hope we will have when our battle and travels become much, much worse.  Prayers and Blessings Kaycie.

NOTE TO REMEMBER: Sometimes we share what may seem like medical information, but we are only giving descriptions and highlights of various aspects of having COPD and/or asthma and no way do we ever want our information to be considered medical treatment type of information, always consult your physician for more, clearer and more medical founded information.

As always – if you or anyone you know have any symptoms involving lung and breathing functionality, and they linger over and over while disrupting a lifestyle – then please ask questions and get it checked out.

Remember – a person without breathing is a person without life itself.

I bid to all – smiles, prayers, blessings and steady breathing – Mr. William.

(Copyright@2015, CrossDove Writer through wheezingaway.com)

(Image used cleared for use by yahoo.com and/or google.images.com)

Must Know Words of COPD/Asthma – Today is ‘Apprehension’

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Reflections--Apprehension While having to battle life threatening diseases like COPD and Asthma we always need to be prepared and that preparation includes many, many items of information to help our battles be successful.

Those of us with Wheezingaway.com, COPD Travels and CrossDove Writer continually and dutifully work toward helping raise awareness among others about these two diseases of COPD and Asthma because “without breath we are without life itself”.

Those with COPD and/or Asthma have the duty to learn and know the language of these dreadful lung diseases.

With that idea we discuss some of what we call ‘must know words’ of life with COPD/Asthma – and today we discuss ‘Apprehension ’.

‘Apprehension’ is the defined as ‘an awareness or understanding of something that may happen’ or ‘as anxiety or fear that something bad or possible unpleasant will happen’.

Recently I posted a writing on dealing with some of my own apprehensions (https://wheezingaway.com/2015/08/04/lenny-my-copdasthma-me-4-today-apprehension-is-running-thick/) as they seemed so real they could have made a difference on my travels with COPD/Asthma at that time.

If I go by the writings I see throughout the internet I get the sense that apprehension is something which many deal with on a regular basis.

Apprehension can be almost crippling to someone who may already be in a weakened state of thought about their future – especially for those who really struggle with getting things done, going places and doing the things they used to do.

But just like many other aspects of living with a daily battle of COPD/Asthma, it will be only what we as individuals fighting those daily fights are up to mentally, physically and spiritually.  The weaker we may be on any of those three aspects the better the possibility that apprehension can creep in and really mess with our outlook for the hour, day, week, month or even year.

We all should have that spouse, friend, mentor, family member, pastor or counselor that we can count on to share with when things are both wonderfully delightful as well as be the rock or shoulder to lean on when we struggle in our darkest days of possible despair.  I mention these people because the moment you feel that touch of apprehension entering your thought process and attitude about something, anything – these are the people you should probably touch base with and help keep those fears or anxiousness from messing with your situation.

Apprehension can rattle everything in a person’s moment when it grabs hold and those of us who already battle the frustrations of COPD/Asthma anxiety or fear are most likely already blended in with the daily battles we have so putting those on supercharge with apprehension is never a welcomed feeling.

The  ‘the word to know’ for today’s battle with COPD/Asthma is ‘Apprehension’ and all the fears and anxiety that may go with it – know it, feel it and fix it – we already have enough fears and anxiousness in our daily battles.

NOTE TO REMEMBER: We only give descriptions and highlights of various aspects of having COPD and/or asthma and no way do we ever want our information to be considered medical treatment type of information, always consult your physician for more, clearer and more medical founded information.

As always – if you or anyone you know have any symptoms involving lung and breathing functionality, and they linger over and over while disrupting a lifestyle – then please ask questions and get it checked out.

REMEMBER ALWAYS that without breathing a person is without life itself.

Now I bid to all – smiles, prayers, blessings and steady breathing – Mr. William.

(Copyright@2015, CrossDove Writer)

(Images used by permission from yahoo.com and/or google.images.com.)

(Information gathered from various books and internet sources discussing COPD, Asthma and other lung diseases)

‘Lenny’ (my COPD/Asthma) & Me 4 Today – – Apprehension is running thick

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Reflections--LifeIsLikeAFight Being willing to share with others the path I am traveling while battling ‘Lenny’ (name I have given my COPD/Asthma) is almost like therapy for me while also giving me the responsibility of taking my battle seriously.

With the help of social media I know I can also reach out to others who are also fighting similar battles and hopefully at time supply a little insight, little knowledge and maybe stir up some questions.

Today I once again share where I am at and maybe how I may or may not be dealing with it.

Heading out on a short road trip, taking me back to my old stomping grounds of Lincoln, Nebraska and while excited, I seem to feel a deep sense of apprehension.

The road trip is partially out of necessity as my 81-year old aunt from the east coast has been here for a couple of days on the back end of her 10-day family visit to the great plains and since the end of her visit requires catching a plane out of Lincoln then somebody has to get her to the airport on time.

Any trip to Lincoln is exciting as it gives me a time to reflect on a wonderful time of growing up (at least kindergarten through ninth grade) while also a bit of a sad time as so much has changed and so many folks are no longer with us, but still – going to Lincoln is a trip I almost always will welcome with open arms.

So why the deep sense of apprehension – by looking within I think I can find the levels of apprehension and why they are running deep today.

For one I have not had a very enjoyable summer with the hot temperature and high humidity causing ‘Lenny’ to wrestle with me much more often than normal and every time we wrestle it seems to just blow up my energy like a prick of a pin to a fully inflated balloon.  This alone can cause more than enough apprehension in any and all may try to do in any day, week or month.

Secondly, anytime I travel anymore I find a raised level of stress because of having to make sure I have my meds, make sure I have an extra rescue inhaler, make sure I have my nebulizer machine and meds, make sure I have my c-pap machine for sleeping and still make sure I pack the clothes and personal necessities I will be needing.

A third reason could be that new exciting world of journalism I have re-entered on a free-lance level writing for a new weekly newspaper in the area.  Knowing that next weeks edition is requiring three personal profiles, a large fall sports preview plus a recap of the next scheduled local school board meeting.  And the appointments and contacts I need to make need to be made now, but yet scheduled in a two day window for when I get back – time frames sometimes are such a pain.

A fourth reason for some deep apprehension, and this one is more of a personally fulfilling one, will be having the time to visit a few old friends, the old stomping ground neighborhood and schools as well as taking pictures, pictures and more pictures – plus the goal of going through my Dad’s house and taking many, many pictures of pictures and things.

So apprehension can be defined from two different angles – one being of understanding and grasp of something/somewhere/somebody and/or a filling of anxiety or fear.  By those definitions I am comfortable knowing that I will, at least for the next couple of days, have a deep feeling of all things defined as apprehension.

And this all comes without facing the fact that my visits with my dear, wonderful aunt seem to be getting farther apart and that adds apprehension in the fear that someday, sometime, somehow she too will be gone and our human visits will be no more.

And that my friends is where ‘Lenny’ (my COPD/Asthma) and me are at 4 today.

*** I continue a request for all to hold Kaycie Chapman (from down New Zealand way) in your thoughts, prayers and blessings as she continues her courageous Facebook sharing of her continuing battle with late stages of emphysema/asthma/COPD – and she continues to do it with the level of faith and hope for which we all should hope we will have when our battle and travels become much, much worse.  Prayers and Blessings Kaycie.

NOTE TO REMEMBER: Sometimes we share what may seem like medical information, but we are only giving descriptions and highlights of various aspects of having COPD and/or asthma and no way do we ever want our information to be considered medical treatment type of information, always consult your physician for more, clearer and more medical founded information.

As always – if you or anyone you know have any symptoms involving lung and breathing functionality, and they linger over and over while disrupting a lifestyle – then please ask questions and get it checked out.

Remember – a person without breathing is a person without life itself.

I bid to all – smiles, prayers, blessings and steady breathing – Mr. William.

(Copyright@2015, CrossDove Writer through wheezingaway.com)

(Image used cleared for use by yahoo.com and/or google.images.com)

‘Lenny’ (my COPD/Asthma) & Me 4 Today – – Busy, Hea and then Busy some more

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Reflections--COPD Being willing to share with others the path I am traveling while battling ‘Lenny’ (name I have given my COPD/Asthma) is almost like therapy for me while also giving me the responsibility of taking my battle seriously.

With the help of social media I know I can also reach out to others who are also fighting similar battles and hopefully at time supply a little insight, little knowledge and maybe stir up some questions.

Today I once again share where I am at and maybe how I may or may not be dealing with it.

I know I have slipped a bit as it has been 10 days since but I can honestly say it is because I have actually gotten busy, wrestled with the heat and got busy again.

Busy trying to organize my routine, of course with summer my wife is around more and it gives us time together, something which we do not always get during the school year – but it does seem to knock me off my routine, or at least the routine I try to have.  So I have been going through lots of stuff and re-organizing just how and when I need to get things done.

Then the weather decided to bounce around with high temperature, high humidity and/or a combination of, all of which seem to bother my COPD/Asthma much more than I seemed to remember in the past.

The humidity is what really seems to get ‘Lenny’ (my COPD/Asthma) fired up and then I seemed to get really tired out really quickly – FRUSTRATING is the only way for me to describe it.

And busy some more as I get more into writing for the new local weekly newspaper (found on facebook under McPherson News and Information) and with the fall season fast approaching I find myself busy trying to whirlwind all the local sports previews together and that is fun, yet busy busy.

While I get so very frustrated when the weather slaps me down for a while to recuperate, at least I know if I can stay awake and keep the fingers moving I should still be writing aways, sharing my life, my news, my world with the world around me – I just need to re-organize and get into a steady, workable, productive routine while being aware of those triggers like heat and humidity that may knock everything out of its normal path of travel.

For now that is what I have and that my friends is where ‘Lenny’ (my COPD/Asthma) and me are at 4 today.

PRAYERS *** I continue a request for all to hold Kaycie Chapman (from down New Zealand way) in your thoughts, prayers and blessings as she continues her courageous Facebook sharing of her continuing battle with late stages of emphysema/asthma/COPD – and she continues to do it with the level of faith and hope for which we all should hope we will have when our battle and travels become much, much worse.  Prayers and Blessings Kaycie.

NOTE TO REMEMBER: Sometimes we share what may seem like medical information, but we are only giving descriptions and highlights of various aspects of having COPD and/or asthma and no way do we ever want our information to be considered medical treatment type of information, always consult your physician for more, clearer and more medical founded information.

As always – if you or anyone you know have any symptoms involving lung and breathing functionality, and they linger over and over while disrupting a lifestyle – then please ask questions and get it checked out.

Remember – a person without breathing is a person without life itself.

I bid to all – smiles, prayers, blessings and steady breathing – Mr. William.

(Copyright@2015, CrossDove Writer through wheezingaway.com)

(Image used cleared for use by yahoo.com and/or google.images.com)